health
Nearly 600 people in Serbia suffer from hemophilia
World Hemophilia Day, observed annually on April 17, provides an opportunity to draw public attention to people living with hemophilia and other rare blood clotting disorders, as well as the challenges they face daily, said the president of the Association of Hemophiliacs of Serbia, Dejan Petrović.
TL;DR
- World Hemophilia Day on April 17 raises awareness for individuals with rare blood clotting disorders.
- Over 1,000 people in Serbia have rare blood clotting disorders, including 580 with hemophilia.
- Inadequate treatment is available for only about 25% of registered cases globally.
- While hemophilia is incurable, the focus is on preventing complications and disability through early diagnosis and therapy.
- Serbia provides modern diagnostics, medications, and therapy for all indicated patients through the Republic Health Insurance Fund.
- Early diagnosis, ideally in the first year of life, is crucial for starting treatment and preventing internal bleeding and long-term damage.
- Orthopedics and physiotherapy play a role in managing existing physical damage, with joint replacement sometimes necessary.
- This year's theme, 'Diagnosis: First step to care,' stresses the importance of timely and accurate diagnosis.
- There's a call for better recognition and diagnosis of hemophilia in females.
- Continuous support, including innovative therapies, multidisciplinary treatment, and psychosocial support, is vital.
- An appeal is made to institutions, healthcare workers, patient associations, and media to raise awareness for equal chances of diagnosis and treatment in Serbia.