VUČIĆ OBEZBEDIO TRIKAFTU
Država obezbedila terapiju koja menja život
TL;DR
- Serbia has secured the innovative drug "Trikafta" for patients with cystic fibrosis through an initiative by President Aleksandar Vučić.
- Approximately 400 patients in Serbia suffer from cystic fibrosis, a rare genetic disease.
- The drug "Trikafta" significantly improves the quality of life and offers a chance for a longer future for patients.
- Cystic fibrosis causes dense mucus secretion that damages lungs and digestive organs.
- Before 2012, rare diseases were not a focus in Serbia, and the average life expectancy for cystic fibrosis patients was around 25 years.
- Since 2012, Serbia has been treating over 42 different rare diseases, including cystic fibrosis.
- The country also implements screening programs for rare diseases, including cystic fibrosis, at birth.
- Serbia provides three modern therapies for spinal muscular atrophy, similar to "Trikafta" in improving patient lives.
- The availability of these treatments is facilitated by the Republican Health Insurance Fund.
- The establishment of the Office for Rare Diseases, also initiated by President Vučić, provides support to patients and families facing rare illnesses.
- The drug "Trikafta" became available in Serbia in December 2021, with patients reporting profound positive impacts on their lives and ability to plan for the future, including motherhood.