Anđela zbog temperature bila 76 puta u bolnici, majka primetila da ne vidi noću, a onda je saznala da ima retku bolest! Srbija za nju uvezla lek od pola miliona
Moja Anđela (22) rođena je kao zdravo dete. Pre nešto više od šest godina otkrili smo da je jedina u Srbiji koja ima redak atipični metabolički poremećaj, koji je prvo doveo do slabovidosti, a onda i do toga da noću ne vidi ništa... Zahvaljujući našoj stabilnoj državi i predsedniku Aleksandru Vučiću, moje dete je u oktobru minule godinedobilo lek koji za godinu dana košta oko 570.000 evra!
TL;DR
- Anđela Petrović was diagnosed with a rare atypical metabolic disorder over six years ago, leading to progressive vision loss.
- Her mother, Milijana Petrović, spent over a decade seeking a diagnosis and treatment, facing numerous medical examinations and high costs.
- After exhausting financial resources, Milijana contacted the Serbian President, Aleksander Vučić, who intervened to secure state-funded treatment.
- Srbija imported a medication for Anđela costing around 570,000 euros annually, which she began receiving in October.
- After three months of treatment, Anđela is showing improvement and has started to remove her glasses, with initial signs of recovering night vision.
- Milijana expressed deep gratitude to the President and the state for providing her daughter with a chance at life.