Dimitrije (2) has SMA, but thanks to therapy and state help, you wouldn't know: We went from shock and despair to our son jumping and not touching the ground
Dimitrije Krnjić was born on January 15, 2024, in Gornji Milanovac, and 15 days after birth, he was diagnosed with a rare and severe disease, spinal muscular atrophy (SMA) type 1, the most severe form. He received gene therapy on the 44th day after birth. He has just turned two years old and is developing completely normally without any symptoms of the disease.
TL;DR
- Dimitrije Krnjić was diagnosed with SMA type 1 at 15 days old.
- He received gene therapy on the 44th day after birth.
- At two years old, he is developing normally without any symptoms of the disease.