2011. GODINE BROJ ONIH KOJI SU SE LEČILI OD RETKIH BOLESTI IZ BUDŽETA JE BIO NULA Olivera Jovović za Alo!: Danas se leče 930 pacijenata i više od 40 dijagnoza

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2011. GODINE BROJ ONIH KOJI SU SE LEČILI OD RETKIH BOLESTI IZ BUDŽETA JE BIO NULA Olivera Jovović za Alo!: Danas se leče 930 pacijenata i više od 40 dijagnoza

TL;DR

  • Rare disease treatment funding in Serbia began in 2012 with a budget, as opposed to zero in 2011.
  • The number of patients treated from the budget has grown from 8 in 2012 to 930 currently.
  • The budget initially covered 2 diagnoses and now includes over 40 different rare diseases.
  • Additional treatments are funded through hospital procurements, with approximately 20 million spent last year on such medications.
  • The state also finances treatment abroad for rare diseases, including necessary surgeries and pre/post-operative care.
  • The current situation is described as incomparable to the past, offering parents a clear point of support.

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